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Top Facebook VP launches charity to find treatment for incurable cancer follicular lymphoma



Facebook's vice president of Europe, the Middle East and Africa, Nicola Mendelsohn, has launched a new aid to find the treatment that currently has untreated blood cancer and its hundreds of thousands of people.

The Follicular Lymphoma Foundation (FLF) is a charitable organization that supports new patients and treatments for follicular lymphoma while supporting patients and their families and funding research research only. It aims to earn $ 20 million (£ 15.5 million) in its first three years and hopes to find a cure for the disease in the next decade.

Rağmen Despite hundreds of thousands of people living with follicular lymphoma, it has a very low profile and relatively little investment in the disease, Yahoo Yahoo Finance UK said in a statement.

Ortalama An average 20-year survival from diagnosis may look good on paper, but I have a husband in my 40s and four beautiful children I'd like to see to grow up. It's not enough and I'm not satisfied when we know that we have the knowledge and technology that provides a treatment. "

In the winter of 2016, Mendelsohn received news that there is incurable blood cancer, follicular lymphoma.

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Watch the full Nicola Mendelsohn Global Change Agents interview here"data-reactid =" 27 ">Watch the full Nicola Mendelsohn Global Change Agents interview here

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "In a previous interview by Yahoo Finance UK ;Global Exchange Agencies with Lianna Brinded & nbsp;“This weekend was undoubtedly – because I was in a bit limbo, we didn't know what could happen – the worst weekend of my life, Mend Mendelsohn said. Data "data-reactid =" 28 "Previous interview with Yahoo Finance UKs Global Exchange Agents with Lianna Brinded "This weekend was undoubtedly – because I was in a bit limbo, we didn't know what could be – the worst weekend of my life," said Mendelsohn.

“I was able to spend about 18 months without the treatment I had last summer, and I had to get chemo and immunotherapy, which wasn't Yani I mean, it was terrible.

He stressed that not all treatments and cancers are the same, and that people can react very differently to treatment. Four married mothers praised the support of her family and doctors.

Dim I was able to work through it. I've been very supportive and lucky, I've had great doctors and now this is part of me. I'il keep watching. I feel good. I feel good, Mend Mendelsohn said.

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Late last year, Mendelsohn & nbsp;announces cancer in remission"data-reactid =" 32 "> Late last year, Mendelsohn announced that his cancer was in remission.

<h2 class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "What is follicular lymphoma"data-reactid =" 34 ">What is follicular lymphoma

Public follicular lymphoma is not highly conscious. Cancer is the most common low-grade non-Hodgkin's lymphoma, with approximately 2,000 people diagnosed in the UK each year alone.

  • Approximately 20% of those diagnosed have a poor prognosis, particularly an acute form of follicular lymphoma.

  • For 80%, the disease can survive for decades in a chronic form, worried about never knowing when the disease will return, and often facing difficult daily symptoms or long-term side effects of treatments.

Araştırma The amount of research funding for follicular lymphoma has been relatively reduced over time, and despite advances, the medical and research community still does not understand follicular lymphoma as well as we want or does not understand it well enough to identify treatments for all patients. Klinik Hematologist and scientific advisor of the Foundation. Jessica Okosun.

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Mendelsohn spent the next person at the first diagnosis Within a few months & nbsp ;Living with Follicular Lymphoma Facebook group. The closed group now has more than 6,000 members. "Data-reactid =" 40 "> When Mendelsohn was first diagnosed, he spent the next few months researching his condition until he came across the group living with Follicular Lymphoma Facebook. He has more than 6,000 members.

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Said & nbsp;Global Exchange Agents with Lianna Brinded: “They're my best advice and inspiration, and I'm just going to go back to my & # 39; punk & # 39; It was. We had deeply personal things with each other because we were there to help each other. "41"> he said Global Exchange Agents with Lianna Brinded: “They're just my best source of advice and inspiration when I go and ve when I have someone iyle we share deeply with someone because we're there to help each other. "

Following the launch of the charity, Mendelsohn wanted to state that years later, he was now a co-director of the Facebook group and said he was in his 20s and diagnosed late adolescents. For them, it is said that they may have 20 years to continue their lives, and exhausting treatment is inexcusable. "

Nicky Greenhalgh, director of the Facebook group Living with Follicular Lymphoma, said: yaşamak Living in a chronic and often invisible state like follicular lymphoma can be a isolating feeling and cancer is a terrible word.

“While this form of blood cancer attracted little attention, when I was diagnosed in 2014, I had no information and absolutely no support networks,” he said.

Yaşam When I founded the Facebook group Life with Follicular Lymphoma. I was looking for a sense of belonging at a time when I was very lost and alone. I never expected it to be his community.

Im I'm excited to see how the launch of the Follicular Lymphoma Foundation will energize our community and help them feel themselves seen. ”

<h2 class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "Raising awareness for “invisible” disease"data-reactid =" 55 ">Raising awareness for “invisible” disease

To raise awareness, the charitable The & Partnership started an advertising campaign with the support of celebrities like singer Katherine Jenkins and actor Tracey Ullman.

Rankin – presents images of one of the most famous photographers in the world. It aims to make photography invisible, often using a purple microscope to expose an invisible disease – similar to the dye used to make the disease visible on a microscope.

<p class = "canvas-atom canvas-text Mb (1.0em) Mb (0) – sm Mt (0.8em) – sm" type = "text" content = "READ MORE: Facebook How did Nicola Mendelsohn use the Groups to navigate cancer diagnosis?"data-reactid =" 58 ">READ MORE: Facebook How did Nicola Mendelsohn use the Groups to navigate cancer diagnosis?

Philanthropy also created an augmented reality Instagram filter developed by Myreality.design, which allows users to “expose lenf the purple-faced, lymphatic system on their faces to raise awareness and increase donations about follicular lymphoma.

Yan In addition to trying to find new treatments and therapies that are critical to follicular lymphoma, the Foundation aims to raise awareness about this invisible disease and help people find supportive communities such as Life with Follicular Lymphoma Facebook, which Nicola has helped, Ok said Dr. Okosun. .


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