A mother who thought her four-year-old son's crying eye had a cold was left to sag when he was diagnosed with cancer.
Harri Cooke from Tewkesbury, Gloucestershire, had been a happy and healthy tot before his mother, the 33-year-old Carly realized last September was a crying eye.
Initially, Harri's face was discovered after his son was believed to have a common cold that caused conjunctivitis, until he realized more tests had been carried out and that there was a deadly cancerous mass behind his nose.
In January, Harri met Ewing's Sarcoma, a rare bone cancer, and since then the tumor needed a tiring cycle of chemotherapy to reduce the tumor on his face, leading to US treatment.
Harri is now in remission after nine months of treatment, and his mother, Carly, shares stories to create awareness.
Carly, a freelance massage therapist, ilk Most of the time I had a cold, I didn't think much of a crying eye at first.
"The doctors agreed that the common cold is likely, but it was believed to have a blocked tear canal as the weeks passed.
"It didn't bother him, he was always very happy.
. But when his face started to swell, we were directed to an eye specialist from our GP.
U Six doctors came in one time, and they all looked really worried.
"The NHS did what they could, but we didn't realize how serious it was.
"Harri's bone structure around the eyes had changed, showing the abusive mass of people behind it.
"His type was very small – we were in full shock.
"You never think you can be your child."
Six days after the diagnosis of Harri, he started chemotherapy on February 2nd this year.
Carly, who works as a mechanic, and her husband, James Cooke 30, found that they had to focus entirely on the treatment of Harri.
Cancer required treatment only in America and other NHS treatments.
To give Harri the best possible rates, cancer requires treatment with proton beam therapy – a type of radiotherapy that uses protons against x-rays.
Carly added: "I have another son named Josh who is now 14 months, but we had to focus on Harri.
"His family mates managed to raise us £ 6,000 to take him to receive his proton beam treatment.
"The NHS finances treatment and main expenditure, but we cannot allow James to take 12 weeks away from work.
"And he was still smiling, yet, despite everything, it was harder than watching him, like torture."
Harri undertook 30 treatments in the USA in Florida – daily under general anesthesia for six weeks – with 14 cycles of chemotherapy.
Fortunately, everything was invaluable, and the young are now in remission, but the family is no longer worried about how their treatment will affect the long-term.
Carly said: kanser I believe that only one percent of the donations of the major cancer charities go to children's cancer.
"The drug is much more difficult for children.
Harri's treatments mean that they can experience growth problems, experience dental problems, and are more likely to develop cancer in later life.
”He should have had more than 20 blood transfusions to try and save his life.“
Carly encourages other parents to recognize the signs of this deadly disease and helps to raise awareness of how a child can be affected.
. It's hard to know what to look for, and rarely, Car Carly said.
"Blood products are now exhausted and donors are needed for both blood and platelet transfusions.
"Aid for children with cancer, such as CLIC Sargent, is perfect to help and inform families."