Monday , September 20 2021

A child faces the most difficult choice between wakefulness or death – Austria



A 1-year-old English boy suffers from a rare condition that makes his sleep a terrible threat.
Charlie Wagstaff was infected with congenital center tingling syndrome or "immortal curse", a rare disease that infects only 1000 people worldwide.

The disease affects the way the central nervous system controls the breathing process, making it necessary for the child to wear a mask attached to an artificial respirator every time he falls asleep.

In this disease, Charlie's central nervous system cannot regulate breathing properly when he sleeps, which means that he does not respond to the increased levels of carbon dioxide in the blood, which allows the healthy person to breathe.

As Charlie is discharged from the hospital at the age of 4 months, his carers should carefully monitor the oxygen and carbon dioxide levels in his blood while he sleeps.

According to the Daily Mail, the friends of the Charlie family started an e-mail to raise money to buy a new mask for Charlie's face, because his current mask stopped the development of his face and left small head abnormalities.

The goal was to increase the amount that Charlie could travel to Denmark with their parents. He said doctors would develop a mask that would allow his face to grow normally, but the campaign could save more money than expected.


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